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The PROMISE Pediatric Study 6 to 11 Years Old N/A This is a prospective, multi-center observational study. The study is desig...
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University of Alabama at Birmingham
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Sinus Disease in Young Children With Cystic Fibrosis N/A This is a prospective, observational study examining the impact of highly e...
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Children's Hospital Colorado
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The Impact of Patch Rx Technologies on Adherence to Vitamin and Trikafta Therapies in Patients With Cystic Fibrosis NA This proposed pilot study will assess if the Patch Technology system will i...
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The University of Texas Health Science Center at San Antonio
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Inhaled Therapy Adherence and Outcomes to Kaftrio in Cystic Fibrosis N/A Cystic fibrosis (CF) is a life-limiting and life-long genetic condition whi...
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Sheffield Teaching Hospitals NHS Trust
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Canadian Observational Study Evaluating the Long-term IMPACT of Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) Modulators on People With CF N/A This observational study intends to investigate health trends and data in c...
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British Columbia Children's Hospital
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TAAI Erasmus Research Initiative to Fight CF: Monitoring Inflammation in CF Lung Disease Into a New Era N/A Progressive destruction of the lungs is the main cause of shortened life ex...
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Erasmus MC - Sophia Children's Hospital
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Evaluation of Lung T1-MRI in Pediatric Cystic Fibrosis Patients N/A In this observational study, the investigators evaluate the sensitivity of ...
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Riley Hospital for Children
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Trikafta Exercise Study in Cystic Fibrosis N/A Shortness of breath (dyspnea) during exercise is a major source of distress...
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UBC Centre for Heart Lung Innovation, St. Paul's Hospital
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Population Pharmacokinetics of Elexacaftor-tezacaftor-ivacaftor in a Paediatric Population N/A Cystic fibrosis is a rare, progressive genetic disease caused by a mutation...
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Hôpital Femme Mère Enfant (HFME)
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Gut Imaging for Function and Transit in Cystic Fibrosis 3 Junior N/A Recently trial data has shown that the medicine KaftrioTM (Elexacaftor/ Tez...
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Queen's Medical Centre
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